For the past month, Liam has been having migraines every day. Usually it's once a day, but sometimes twice. Sometimes he just puts a pillow over his head and asks for the lights out, but sometimes he screams and cries. The pain can be intense for him. His neurologist has increased his Diamox and we've scheduled a sedated MRI/MRA for September 29th. This MRI will be his 4th MRI and his 11th time under some form of sedation. He has the genetic predisposition for brain bleeds and with the headaches, we can't be too careful. I hope we can find out the cause of this so we can help him. It hurts to see our baby in so much pain.
Yesterday he had massive leg cramps and muscle weakness from running on the trail. He couldn't stand up, he crawled from room to room. A hot bath helped quite a bit. Episodic Ataxia can cause leg stiffness/cramping, so it could be related to that, but we're not sure. He really wants to run on the trail again, but maybe we'll just make sure that it's a shorter distance.
So that's what's been going on lately.
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